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  • Cancer in World Trade Center Rescue & Recovery Workers: Past Findings, Current Research and the Future

    Contains 2 Component(s) Recorded On: 09/11/2019

    The collapse of the World Trade Center (WTC) towers due to the terrorist attacks on September 11, 2001 created an unprecedented mixture of hazardous materials including known and suspected carcinogens including, but not limited to, asbestos, polycyclic aromatic hydrocarbons, polychlorinated biphenyls, and dioxins. Three research centers that follow cohorts of rescue/recovery workers since the WTC disaster include: the Fire Department of the City of New York (FDNY); the Icahn School of Medicine at Mount Sinai (ISMMS); and the New York City Department of Health and Mental Hygiene (DOHMH). These centers have reported mostly non-significantly elevated cancer rates post-exposure to the WTC-site. Challenges of determining the causal relationship between WTC exposure and cancer in rescue/recovery workers include: lack of individual-level exposure data for specific chemicals, different exposure ascertainment methodologies for the three cohorts, loss to follow-up, inadequate power for cohort-specific analyses, demographic heterogeneity between the cohorts, and the lack of a viable comparison cohort.

    The collapse of the World Trade Center (WTC) towers due to the terrorist attacks on September 11, 2001 created an unprecedented mixture of hazardous materials including known and suspected carcinogens including, but not limited to,  asbestos, polycyclic aromatic hydrocarbons, polychlorinated biphenyls, and dioxins. Three research centers that follow cohorts of rescue/recovery workers since the WTC disaster include: the Fire Department of the City of New York (FDNY); the Icahn School of Medicine at Mount Sinai (ISMMS); and the New York City Department of Health and Mental Hygiene (DOHMH). These centers have reported mostly non-significantly elevated cancer rates post-exposure to the WTC-site.  Challenges of determining the causal relationship between WTC exposure and cancer in rescue/recovery workers include: lack of individual-level exposure data for specific chemicals, different exposure ascertainment methodologies for the three cohorts, loss to follow-up, inadequate power for cohort-specific analyses, demographic heterogeneity between the cohorts, and the lack of a viable comparison cohort.

  • Call for Data 1995-2017 Instructional Webinar

    Contains 3 Component(s) Recorded On: 08/21/2019

    During this webinar, presenters from IMS and NAACCR will review and discuss updates to… 1. On-line submission procedures and forms 2. New data items, Updates to Data Assurance Agreement & Consent Forms 3. NAACCRPrep 4. Call for Data Edits 5. Other CFD tasks (Virtual Pooled Registry file submission, CaRRI, registry contact updates) The webinar will be recorded and posted to the NAACCR Call for Data page after the webinar: https://www.naaccr.org/call-for-data/ Submission documents will be posted by Thursday, September 13th. Additional tools and supplemental information will be posted as soon as available. We strongly encourage anyone involved in the NAACCR Call for Data submission to view this webinar.

    During this webinar, presenters from IMS and NAACCR will review and discuss updates to…
    1. On-line submission procedures and forms
    2. New data items, Updates to Data Assurance Agreement & Consent Forms
    3. NAACCRPrep
    4. Call for Data Edits
    5. Other CFD tasks (Virtual Pooled Registry file submission, CaRRI, registry contact updates)

    The webinar will be recorded and posted to the NAACCR Call for Data page after the webinar: https://www.naaccr.org/call-for-data/

    Submission documents will be posted by Thursday, September 13th. Additional tools and supplemental information will be posted as soon as available.

    We strongly encourage anyone involved in the NAACCR Call for Data submission to view this webinar.

  • Geocoding Instructional Webinar

    Contains 3 Component(s) Recorded On: 08/21/2019

    During this webinar, presenters will introduce, review, demo and/or discuss: 1. Alias Tables for improving data quality and reducing the burden of manual matches 2. Micro Match Status-a new variable describing the quality of a geocoding match 3. Advanced Search options including "Exhaustive Search," "Uncertainty Hierarchy," and "Limit Minimum Match Score" 4. New NAACCR Manual Geocoding Interface (Beta version) 5. Operations: how to interpret long/lat precision, which census years to append This webinar is relevant to all users of the NAACCR Geocoder including those accessing via the NAACCR Webpage or API, such as SEER*DMS users.

    During this webinar, presenters will introduce, review, demo and/or discuss: 

     1. Alias Tables for improving data quality and reducing the burden of manual matches

     2. Micro Match Status-a new variable describing the quality of a geocoding match 

     3. Advanced Search options including "Exhaustive Search," "Uncertainty Hierarchy," and "Limit Minimum Match Score" 

     4. New NAACCR Manual Geocoding Interface (Beta version)

     5. Operations: how to interpret long/lat precision, which census years to append

    This webinar is relevant to all users of the NAACCR Geocoder including those accessing via the NAACCR Webpage or API, such as SEER*DMS users.

  • Virtual Pooled Registry Cancer linkage System (VPR-CLS)

    Contains 2 Component(s) Recorded On: 08/06/2019

    This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting. Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following: - VPR-CLS Pilot Testing and Next Steps - Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues - Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

    This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting.  Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following:

    - VPR-CLS Pilot Testing and Next Steps
    - Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues
    - Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

    Castine Clerkin, MS, CTR

    VPR Program Manager, NAACCR

    Castine is the Program Manager for NAACCR’s Virtual Pooled Registry project. In this role she oversees all aspects of the project, from pilot linkages to workgroup calls to system development and testing.  Prior to joining NAACCR, Castine was a Program Consultant with CDC’s National Program of Cancer Registries for over 7 years.  Castine began her career in cancer surveillance in 2001, working as the epidemiologist and data manager for the Maine Cancer Registry.

    Steve Friedman, MHA

    Senior Advisor, Surveillance Research Program, NCI/DCCPS

    Steve Friedman, MHA, joined the Surveillance Research Program as a Senior Advisor for Operations in July of 2015. He works on several major initiatives, including SEER, Natural Language Processing (NLP), the Virtual Bio-Repository (VTR) and the Virtual Pooled Registry (VPR). In January 2018 he was named the Lead Contracting Officer Representative (COR) for the SEER Program. Mr. Friedman served as a founding Director for the Association for the Accreditation of Human Research Protection Programs and is a past President of the Board for the Ulman Cancer Fund for Young Adults. He is the recipient of several NIH Merit Awards and a NIH Director’s Award. Mr. Friedman received his Master of Health Services Administration from the George Washington University and is currently Adjunct Faculty with the MPH@GWU program.

    Annelie Landgren, MPH, PMP

    Contractor, Surveillance Research Program, NCI/DCCPS

    Annelie Landgren MPH, PMP  (Project Management Professional) works for the Surveillance Research Program at NCI since November 2018. Before that she worked for the Division of Cancer Epidemiology and Genetics  at NCI for 13 years as a project manager. During the last two years there she worked with the PI of the US Radiologic Technologists Cohort (USRT) Study to submit and track over 47 applications to link with as many registries as possible as a part of the VPR-Pilot studies. In my new position in the Surveillance Research Program she continues to be involved in the VPR efforts.

    Danping Liu, PhD

    Investigator Biostatistics Branch, NCI/DCEG

    Dr. Liu received his Ph.D. in biostatistics from the University of Washington in 2010, and completed a two-year postdoctoral training at the National Alzheimer’s Coordinating Center, University of Washington. Prior to joining NCI, he served as a tenure-track investigator at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). Dr. Liu joined the Biostatistics Branch of the NCI Division of Cancer Epidemiology and Genetics in October 2017.

  • Annual Report to the Nation with a Special Feature on Cancer in Adults Aged 20-49

    Contains 2 Component(s) Recorded On: 06/27/2019

    On behalf of NAACCR and our co-authors from ACS, CDC, and NCI, we are pleased to present a webinar on the latest Annual Report to the Nation on the Status of Cancer. This is our 21st Annual Report, and NAACCR was the lead agency. The Annual Report represents a collaborative effort by senior researchers from each major cancer surveillance organization in the United States to produce the up to date and comprehensive trends in cancer incidence and mortality. Each year we also focus on a special topic, and this year we focused on cancer among adults aged 20-49.

    On behalf of NAACCR and our co-authors from ACS, CDC, and NCI, we are pleased to present a webinar on the latest Annual Report to the Nation on the Status of Cancer. This is our 21st Annual Report, and NAACCR was the lead agency. The Annual Report represents a collaborative effort by senior researchers from each major cancer surveillance organization in the United States to produce the up to date and comprehensive trends in cancer incidence and mortality. Each year we also focus on a special topic, and this year we focused on cancer among adults aged 20-49.

    Recinda Sherman

    Program Manager of Data Use and Research

    Elizabeth Ward

    Consultant to NAACCR

    Elizabeth is an epidemiologist and former Vice President for Surveillance and Health Services Research at the American Cancer Society. She currently works as a consultant to NAACCR helping to coordinate standards development across major surveillance organizations and was the lead author for the Annual Report to the Nation this year.

  • California Research Highlights: Focus on Minority Populations

    Contains 1 Component(s) Recorded On: 05/30/2019

    California is the most populated state and has the largest ethnic/racial minority population in the US. With 20% of the nation’s minority population living in the state, California has a unique population to both describe and serve in regards to cancer prevention and control. This NAACCR Talk highlights three California, minority-focused cancer research projects on Chinese Americans, Hispanics, and African Americans.

    California is the most populated state and has the largest ethnic/racial minority population in the US. With 20% of the nation’s minority population living in the state, California has a unique population to both describe and serve in regards to cancer prevention and control. This NAACCR Talk highlights three California, minority-focused cancer research projects on Chinese Americans, Hispanics, and African Americans. 

    You will listen via streaming media (through your computer speakers). 
    Or iPhone one-tap :
    US: +16468769923,,869769300# or +14086380968,,869769300# 

    Or Telephone:
    Dial(for higher quality, dial a number based on your current location):     
    US: +1 646 876 9923 or +1 408 638 0968 or +1 669 900 6833 
    Canada: +1 647 558 0588 
    France: +33 1 8288 0188 or +33 7 5678 4048 
    Italy: +39 069 480 6488 or +39 069 926 8001 
    Australia: +61 2 8015 2088 or +61 8 7150 1149 
    Brazil: +55 11 4680 6788 or +55 21 3958 7888 
    Dominican Republic: +1 829 947 9220 or +1 829 956 2188 
    Mexico: +52 229 910 0061 or +52 554 161 4288 
    Peru: +51 1 707 5788 or +51 1 730 6777 
    Puerto Rico: +1 787 945 1488 or +1 787 966 7727 
    Webinar ID: 869 769 300 
    International numbers available: https://zoom.us/u/acNXPwToy4

  • NCI Methods and Tools for Population-Based Cancer Statistics

    Contains 4 Component(s) Recorded On: 05/02/2019

    The Surveillance Research Program (SRP) at the Division of Cancer Control and Population Sciences of the National Cancer Institute provides national leadership in the science of cancer surveillance in the US, which includes analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based cancer statistics. This surveillance infrastructure benefits the public, policymakers, and scientists in understanding changes in cancer incidence and outcomes in all segments of the US population over time. The objective of the webinar is to provide an overview of the breadth and scope of statistical software and tools in the areas of incidence and mortality, survival, prevalence, and geospatial methods and tools. At the completion of the webinar, audience will gain a basic understanding of the software/tools and will be able to explore in more details into specific tools that are applicable in their own work.

    The Surveillance Research Program (SRP) at the Division of Cancer Control and Population Sciences of the National Cancer Institute provides national leadership in the science of cancer surveillance in the US, which includes analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based cancer statistics. This surveillance infrastructure benefits the public, policymakers, and scientists in understanding changes in cancer incidence and outcomes in all segments of the US population over time. The objective of the webinar is to provide an overview of the breadth and scope of statistical software and tools in the areas of incidence and mortality, survival, prevalence, and geospatial methods and tools. At the completion of the webinar, audience will gain a basic understanding of the software/tools and will be able to explore in more details into specific tools that are applicable in their own work.

  • Getting Ready for NAACCR XML in 2020

    Contains 2 Component(s) Recorded On: 03/27/2019

    Starting in 2020, after nearly 30 years of defining a fixed width format for data exchange, NAACCR will be transitioning Volume II of the NAACCR Data Standards and Data Dictionary to an XML based format. This webinar will highlight the readiness of registry software vendors for this important new data standard, as well as explaining the rich set of software resources and technical expertise available to the NAACCR community to make sure this transition to XML is as seamless as possible. This webinar will include presentations from NPCR, SEER, and the NAACCR XML Data Exchange Workgroup. If you are interested in the impact that NAACCR XML will have on your registry or organization and you would like to know the latest news on the XML transition, be sure to attend this webinar.

    Starting in 2020, after nearly 30 years of defining a fixed width format for data exchange, NAACCR will be transitioning Volume II of the NAACCR Data Standards and Data Dictionary to an XML based format. This webinar will highlight the readiness of registry software vendors for this important new data standard, as well as explaining the rich set of software resources and technical expertise available to the NAACCR community to make sure this transition to XML is as seamless as possible. This webinar will include presentations from NPCR, SEER, and the NAACCR XML Data Exchange Workgroup. If you are interested in the impact that NAACCR XML will have on your registry or organization and you would like to know the latest news on the XML transition, be sure to attend this webinar.

    NAACCR XML Resources are publicly available online at: https://github.com/imsweb/naaccr-xml/wiki

    Isaac Hands

    Lead Software Architect, Kentucky Cancer Registry

    Isaac Hands leads the software development efforts of the Kentucky Cancer Registry and assist in managing informatics operations, providing technical leadership, and designing data infrastructure at the Kentucky Cancer Registry and the UK Markey Cancer Center Research Informatics Core. Mr. Hands oversees the software development, database and network operations, and customer support of the state-wide cancer patient data management system in use at all hospital facilities in KY and the statewide SEER/NPCR central cancer registry software.

    Joseph D Rogers

    Team Lead IDSAT, Division of Cancer Prevention and Control

    Joseph D. Rogers received his B.S. and M.S. in Biology/Chemistry and Information Management respectively from Arizona State University (ASU).  He worked in Arizona for the Maricopa County Health Department as a project manager and data analyst before joining CDC in 1991 (first as a contractor and then as a federal employee in 1997).  During Mr. Rogers’ contracting years at CDC, he worked as a systems analyst on information technology projects, as a project manager, and as a data manager within the National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP).  When Mr. Rogers joined the Centers for Disease Control and Prevention (CDC) as a federal employee, he initially worked for the Agency for Toxic Substances and Disease Registry (ATSDR) as data manager and later joined the Division of Cancer Prevention and Control (DCPC)/Cancer Surveillance Branch (CSB) in 1998 as the Team Lead for the Informatics, Data Science, and Applications Team (IDSAT).  In this capacity, Mr. Rogers is responsible for the leadership and management of the DCPC cancer informatics/data science projects and the National Program of Cancer Registries (NPCR) application development/support.   Mr. Rogers has a keen interest in working with NPCR Programs to enhance their use of cancer registry data. He is particularly interested using cancer informatics and process automation to achieve more complete, timely, and accurate cancer incidence data. 

    Fabian Depry

    Senior Systems Analyst

    Fabian Depry, focuses on the design and implementation of biomedical computer systems.  He has extensive experience and expertise in systems design and object-oriented programming, focusing mainly on Java Desktop and Web applications. Mr. Depry is a lead developer and designer on the SEER*DMS project.  He also designed and developed the SEER Abstracting tool, the SEER*Edits Submission tool and the SEER Data Viewer tool.  Mr Depry holds a BS in Computer Science from Universite Catholique de Louvain (UCL), Belgium and a MS in Computer Science from Hood College, Frederick.  He has been with IMS since 2003.

    Jeff Reed

    Senior Database Administrator for the NCDB database

    Jeff Reed has over 30 years in Relational Database Technology and currently overseas the loading of NAACCR data into the COC’s NCDB database.  Jeff joined the XML workgroup only recently but has managed to put together a nice prototype to help showcase the integration of the XML data format utilizing the CDC’s XML.DLL to load the data into the NCDB database that he will be sharing with us today.   

  • PREPARING YOUR MORTALITY DATA TO BE USED IN SEER*STAT

    Contains 2 Component(s) Recorded On: 02/20/2019

    SEER*Stat is a powerful statistical application that is available free of charge from the US National Cancer Institute and provides a mechanism for the analysis of population-based cancer registry data. It has modules for the analysis and reporting of the four most common cancer-related metrics: incidence, survival, prevalence, and mortality.

    SEER*Stat is a powerful statistical application that is available free of charge from the US National Cancer Institute and provides a mechanism for the analysis of population-based cancer registry data. It has modules for the analysis and reporting of the four most common cancer-related metrics: incidence, survival, prevalence, and mortality.

    SEER*Prep is a software that converts text data files to the format required by SEER*Stat. The objective of these series of webinars is to facilitate the use of SEER*Stat software for data that are not in accordance with the NAACCR format. Specifically, we will make use of a more generic, simplified format that complies with data usually available from cancer registries across the world, thus facilitating the use of SEER*prep and SEER*Stat. New variables in this global format include CI5 groupings and Essential TNM. These features will facilitate analysis and reporting of population-based cancer data in a standard format.