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  • NAACCR Best Practices: Recruitment and Retention Toolkit

    Contains 2 Component(s) Recorded On: 05/06/2020

    This webinar will introduce attendees to the new NAACCR Recruitment and Retention Toolkit. The purpose of the Toolkit is to provide central cancer registries (CCRs) with proven strategies for attracting and retaining qualified staff. The Toolkit was developed by the NAACCR Professional Development Steering Committee from best practices submitted by CCRs throughout North America. Every CCR is unique, with its own recruitment and retention challenges. Consequently, no one strategy will suit the needs of every CCR, so the NAACCR R&R Toolkit contains a variety of resources to choose from and customize to meet the specific needs of the registry. The Toolkit is available at https://www.naaccr.org/recruitment-retention-toolkit/.

    This webinar will introduce attendees to the new NAACCR Recruitment and Retention Toolkit. The purpose of the Toolkit is to provide central cancer registries (CCRs) with proven strategies for attracting and retaining qualified staff. The Toolkit was developed by the NAACCR Professional Development Steering Committee from best practices submitted by CCRs throughout North America. Every CCR is unique, with its own recruitment and retention challenges. Consequently, no one strategy will suit the needs of every CCR, so the NAACCR R&R Toolkit contains a variety of resources to choose from and customize to meet the specific needs of the registry. The Toolkit is available at https://www.naaccr.org/recruitment-retention-toolkit/

    Carrie Bateman, BS

    Utah Cancer Registry

    Carrie Bateman has a Bachelor of Science in Information Systems from the University of Utah and has worked at Utah Cancer Registry since 2010.  She began as a part time research assistant, became informatics specialist in 2014, and transitioned to registry manager in March 2019.

    Stephanie Hill, MPH, CTR

    NAACCR

    Stephanie came to NAACCR from the New Jersey State Cancer Registry, where, as Program Manager, she experienced first-hand the many recruitment and retention challenges faced in both the health department and university settings. She is a CTR with nearly 20 years of experience in central and hospital cancer registries and is a certified Lean Six Sigma Green Belt.

  • A Step-by-Step Guide to Creating a Cancer Data Visualization

    Contains 2 Component(s) Recorded On: 02/12/2020

    Cancer data is often available in reports, public data files, and slide decks, but these methods for disseminating data are not interactive, user-friendly, or visually appealing. While data visualizations are available from national cancer organizations, the Louisiana Tumor Registry (LTR) decided that creating a tool tailored to the needs of Louisiana would be a valuable contribution to the dissemination and use of its cancer registry data. Thus, the LTR collaborated with a data visualization specialist to create a user-friendly portal for Louisiana cancer data. The objective of this webinar is to describe the experience of developing an effective data visualization from the perspective of both the data visualization specialist and the state cancer registry.

    Cancer data is often available in reports, public data files, and slide decks, but these methods for disseminating data are not interactive, user-friendly, or visually appealing. While data visualizations are available from national cancer organizations, the Louisiana Tumor Registry (LTR) decided that creating a tool tailored to the needs of Louisiana would be a valuable contribution to the dissemination and use of its cancer registry data. Thus, the LTR collaborated with a data visualization specialist to create a user-friendly portal for Louisiana cancer data. The objective of this webinar is to describe the experience of developing an effective data visualization from the perspective of both the data visualization specialist and the state cancer registry.

    Lauren Maniscalco

    MPH

    Lauren Maniscalco earned a Master of Public Health in Epidemiology from the LSUHSC School of Public Health in New Orleans, LA in 2010. Following the completion of her master's degree, she began working as the Special Studies Coordinator for the Louisiana Tumor Registry (LTR) and became the Registry Liaison in 2016. Ms. Maniscalco manages data dissemination, co-authors the LTR’s annual monographs and reports, and coordinates the data visualization project.

    Cathy Bledsoe

    MPH

    Cathy Bledsoe has a Master of Public Health in Epidemiology from the Colorado School of Public Health. She has worked with cancer registries since 2011, first with the Colorado Central Cancer Registry and later as a contractor with the Cancer Surveillance Branch at CDC. In 2017, she co-founded One Health Insights, a consulting company focused on helping public health and environmental organizations use their data effectively. 

  • Understanding Central Cancer Registries

    Contains 21 Component(s)

    Understanding Central Cancer Registries

    Introduction to Cancer Registries and Cancer Surveillance

    1. Public Health Surveillance Introduction & Fundamentals
    2. Establishing an Effective Population-based Cancer Registry System

    Registry Operations

    1. Casefinding
    2. Follow-up
    3. Data Editing
    4. Record consolidation
    5. Death clearance

    Registry Management

    1. Registry Development
    2. Data Quality and Completeness
    3. Ethics & confidentiality
    4. Data Management – IT resources
      1. Module 1 - Course Introduction
      2. Module 2 - Managing Central Registry's Data
      3. Module 3 - Infrastructure
      4. Module 4 - Security
      5. Module 5 - Electronic Documents and Standards
      6. Module 6 - Interoperability
      7. Module 7 - Registry of the Future
      8. Module 8 - Course Summary

    Uses of Population-Based Registry Data

    1. Calculation and Assessment of Survival Rates
    2. Calculation and Assessment of Cancer Incidence
    3. Using Central Cancer Registry Data for Cancer Control and Cancer Research
  • Interstate Data Exchange

    Contains 3 Component(s) Recorded On: 12/11/2019

    This webinar will be an overview of the NAACCR Interstate Data Exchange Guidelines, the National Interstate Data Exchange Agreements, and the National Interstate Data Exchange Application System (N-IDEAS).

    This webinar will be an overview of the NAACCR Interstate Data Exchange Guidelines, the National Interstate Data Exchange Agreements, and the National Interstate Data Exchange Application System (N-IDEAS).

    Susan Gershman

    Director

    Director of the Massachusetts Cancer Registry

    Reda Wilson

    Epidemiologist

    Reda Wilson, MPH, CTR is an Epidemiologist with CDC’s Cancer Surveillance Branch.  Ms. Wilson has more than 30 years’ experience in cancer surveillance; in an oncology practice and pathology laboratory, as a hospital cancer registrar, Director of the Alabama Statewide Cancer Registry, and Program Consultant with CDC’s National Program of Cancer Registries before moving to her current epidemiology position.  She is the author or co-author of several presentations and publications.

    Shailendra Bhavsar

    Technical Specialist

    Mr. Bhavsar is currently a technical specialist at ICF, with more than 18 years of experience in the IT industry, of which over 10 years have been dedicated to cancer surveillance community. He is a development manager and security steward for the CDC/NPCR-CSS project awarded to ICF.  His responsibilities include supporting the project operations from systems and application perspective, involving in the system and software design and full life cycle system implementation, including NPCR-CSS document server, monitoring system, various utility programs, and on-line query applications. He is a certified Microsoft application developer with extensive experience in VB and .Net technologies and many data reporting development tools.  As a security steward, he is also well versed in security issues and familiar with federal IT security standards. Mr. Bhavsar holds a B. Ed degree, two BS degrees in physics and mathematics respectively, all from Gujarat University in India.

  • Cancer in World Trade Center Rescue & Recovery Workers: Past Findings, Current Research and the Future

    Contains 2 Component(s) Recorded On: 09/11/2019

    The collapse of the World Trade Center (WTC) towers due to the terrorist attacks on September 11, 2001 created an unprecedented mixture of hazardous materials including known and suspected carcinogens including, but not limited to, asbestos, polycyclic aromatic hydrocarbons, polychlorinated biphenyls, and dioxins. Three research centers that follow cohorts of rescue/recovery workers since the WTC disaster include: the Fire Department of the City of New York (FDNY); the Icahn School of Medicine at Mount Sinai (ISMMS); and the New York City Department of Health and Mental Hygiene (DOHMH). These centers have reported mostly non-significantly elevated cancer rates post-exposure to the WTC-site. Challenges of determining the causal relationship between WTC exposure and cancer in rescue/recovery workers include: lack of individual-level exposure data for specific chemicals, different exposure ascertainment methodologies for the three cohorts, loss to follow-up, inadequate power for cohort-specific analyses, demographic heterogeneity between the cohorts, and the lack of a viable comparison cohort.

    The collapse of the World Trade Center (WTC) towers due to the terrorist attacks on September 11, 2001 created an unprecedented mixture of hazardous materials including known and suspected carcinogens including, but not limited to,  asbestos, polycyclic aromatic hydrocarbons, polychlorinated biphenyls, and dioxins. Three research centers that follow cohorts of rescue/recovery workers since the WTC disaster include: the Fire Department of the City of New York (FDNY); the Icahn School of Medicine at Mount Sinai (ISMMS); and the New York City Department of Health and Mental Hygiene (DOHMH). These centers have reported mostly non-significantly elevated cancer rates post-exposure to the WTC-site.  Challenges of determining the causal relationship between WTC exposure and cancer in rescue/recovery workers include: lack of individual-level exposure data for specific chemicals, different exposure ascertainment methodologies for the three cohorts, loss to follow-up, inadequate power for cohort-specific analyses, demographic heterogeneity between the cohorts, and the lack of a viable comparison cohort.

  • Geocoding Instructional Webinar

    Contains 3 Component(s) Recorded On: 08/21/2019

    During this webinar, presenters will introduce, review, demo and/or discuss: 1. Alias Tables for improving data quality and reducing the burden of manual matches 2. Micro Match Status-a new variable describing the quality of a geocoding match 3. Advanced Search options including "Exhaustive Search," "Uncertainty Hierarchy," and "Limit Minimum Match Score" 4. New NAACCR Manual Geocoding Interface (Beta version) 5. Operations: how to interpret long/lat precision, which census years to append This webinar is relevant to all users of the NAACCR Geocoder including those accessing via the NAACCR Webpage or API, such as SEER*DMS users.

    During this webinar, presenters will introduce, review, demo and/or discuss: 

     1. Alias Tables for improving data quality and reducing the burden of manual matches

     2. Micro Match Status-a new variable describing the quality of a geocoding match 

     3. Advanced Search options including "Exhaustive Search," "Uncertainty Hierarchy," and "Limit Minimum Match Score" 

     4. New NAACCR Manual Geocoding Interface (Beta version)

     5. Operations: how to interpret long/lat precision, which census years to append

    This webinar is relevant to all users of the NAACCR Geocoder including those accessing via the NAACCR Webpage or API, such as SEER*DMS users.

  • Virtual Pooled Registry Cancer linkage System (VPR-CLS)

    Contains 2 Component(s) Recorded On: 08/06/2019

    This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting. Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following: - VPR-CLS Pilot Testing and Next Steps - Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues - Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

    This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting.  Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following:

    - VPR-CLS Pilot Testing and Next Steps
    - Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues
    - Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

    Castine Clerkin, MS, CTR

    VPR Program Manager, NAACCR

    Castine is the Program Manager for NAACCR’s Virtual Pooled Registry project. In this role she oversees all aspects of the project, from pilot linkages to workgroup calls to system development and testing.  Prior to joining NAACCR, Castine was a Program Consultant with CDC’s National Program of Cancer Registries for over 7 years.  Castine began her career in cancer surveillance in 2001, working as the epidemiologist and data manager for the Maine Cancer Registry.

    Steve Friedman, MHA

    Senior Advisor, Surveillance Research Program, NCI/DCCPS

    Steve Friedman, MHA, joined the Surveillance Research Program as a Senior Advisor for Operations in July of 2015. He works on several major initiatives, including SEER, Natural Language Processing (NLP), the Virtual Bio-Repository (VTR) and the Virtual Pooled Registry (VPR). In January 2018 he was named the Lead Contracting Officer Representative (COR) for the SEER Program. Mr. Friedman served as a founding Director for the Association for the Accreditation of Human Research Protection Programs and is a past President of the Board for the Ulman Cancer Fund for Young Adults. He is the recipient of several NIH Merit Awards and a NIH Director’s Award. Mr. Friedman received his Master of Health Services Administration from the George Washington University and is currently Adjunct Faculty with the MPH@GWU program.

    Annelie Landgren, MPH, PMP

    Contractor, Surveillance Research Program, NCI/DCCPS

    Annelie Landgren MPH, PMP  (Project Management Professional) works for the Surveillance Research Program at NCI since November 2018. Before that she worked for the Division of Cancer Epidemiology and Genetics  at NCI for 13 years as a project manager. During the last two years there she worked with the PI of the US Radiologic Technologists Cohort (USRT) Study to submit and track over 47 applications to link with as many registries as possible as a part of the VPR-Pilot studies. In my new position in the Surveillance Research Program she continues to be involved in the VPR efforts.

    Danping Liu, PhD

    Investigator Biostatistics Branch, NCI/DCEG

    Dr. Liu received his Ph.D. in biostatistics from the University of Washington in 2010, and completed a two-year postdoctoral training at the National Alzheimer’s Coordinating Center, University of Washington. Prior to joining NCI, he served as a tenure-track investigator at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). Dr. Liu joined the Biostatistics Branch of the NCI Division of Cancer Epidemiology and Genetics in October 2017.

  • Annual Report to the Nation with a Special Feature on Cancer in Adults Aged 20-49

    Contains 2 Component(s) Recorded On: 06/27/2019

    On behalf of NAACCR and our co-authors from ACS, CDC, and NCI, we are pleased to present a webinar on the latest Annual Report to the Nation on the Status of Cancer. This is our 21st Annual Report, and NAACCR was the lead agency. The Annual Report represents a collaborative effort by senior researchers from each major cancer surveillance organization in the United States to produce the up to date and comprehensive trends in cancer incidence and mortality. Each year we also focus on a special topic, and this year we focused on cancer among adults aged 20-49.

    On behalf of NAACCR and our co-authors from ACS, CDC, and NCI, we are pleased to present a webinar on the latest Annual Report to the Nation on the Status of Cancer. This is our 21st Annual Report, and NAACCR was the lead agency. The Annual Report represents a collaborative effort by senior researchers from each major cancer surveillance organization in the United States to produce the up to date and comprehensive trends in cancer incidence and mortality. Each year we also focus on a special topic, and this year we focused on cancer among adults aged 20-49.

    Recinda Sherman

    Program Manager of Data Use and Research

    Elizabeth Ward

    Consultant to NAACCR

    Elizabeth is an epidemiologist and former Vice President for Surveillance and Health Services Research at the American Cancer Society. She currently works as a consultant to NAACCR helping to coordinate standards development across major surveillance organizations and was the lead author for the Annual Report to the Nation this year.

  • California Research Highlights: Focus on Minority Populations

    Contains 1 Component(s) Recorded On: 05/30/2019

    California is the most populated state and has the largest ethnic/racial minority population in the US. With 20% of the nation’s minority population living in the state, California has a unique population to both describe and serve in regards to cancer prevention and control. This NAACCR Talk highlights three California, minority-focused cancer research projects on Chinese Americans, Hispanics, and African Americans.

    California is the most populated state and has the largest ethnic/racial minority population in the US. With 20% of the nation’s minority population living in the state, California has a unique population to both describe and serve in regards to cancer prevention and control. This NAACCR Talk highlights three California, minority-focused cancer research projects on Chinese Americans, Hispanics, and African Americans. 

    You will listen via streaming media (through your computer speakers). 
    Or iPhone one-tap :
    US: +16468769923,,869769300# or +14086380968,,869769300# 

    Or Telephone:
    Dial(for higher quality, dial a number based on your current location):     
    US: +1 646 876 9923 or +1 408 638 0968 or +1 669 900 6833 
    Canada: +1 647 558 0588 
    France: +33 1 8288 0188 or +33 7 5678 4048 
    Italy: +39 069 480 6488 or +39 069 926 8001 
    Australia: +61 2 8015 2088 or +61 8 7150 1149 
    Brazil: +55 11 4680 6788 or +55 21 3958 7888 
    Dominican Republic: +1 829 947 9220 or +1 829 956 2188 
    Mexico: +52 229 910 0061 or +52 554 161 4288 
    Peru: +51 1 707 5788 or +51 1 730 6777 
    Puerto Rico: +1 787 945 1488 or +1 787 966 7727 
    Webinar ID: 869 769 300 
    International numbers available: https://zoom.us/u/acNXPwToy4

  • NCI Methods and Tools for Population-Based Cancer Statistics

    Contains 4 Component(s) Recorded On: 05/02/2019

    The Surveillance Research Program (SRP) at the Division of Cancer Control and Population Sciences of the National Cancer Institute provides national leadership in the science of cancer surveillance in the US, which includes analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based cancer statistics. This surveillance infrastructure benefits the public, policymakers, and scientists in understanding changes in cancer incidence and outcomes in all segments of the US population over time. The objective of the webinar is to provide an overview of the breadth and scope of statistical software and tools in the areas of incidence and mortality, survival, prevalence, and geospatial methods and tools. At the completion of the webinar, audience will gain a basic understanding of the software/tools and will be able to explore in more details into specific tools that are applicable in their own work.

    The Surveillance Research Program (SRP) at the Division of Cancer Control and Population Sciences of the National Cancer Institute provides national leadership in the science of cancer surveillance in the US, which includes analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based cancer statistics. This surveillance infrastructure benefits the public, policymakers, and scientists in understanding changes in cancer incidence and outcomes in all segments of the US population over time. The objective of the webinar is to provide an overview of the breadth and scope of statistical software and tools in the areas of incidence and mortality, survival, prevalence, and geospatial methods and tools. At the completion of the webinar, audience will gain a basic understanding of the software/tools and will be able to explore in more details into specific tools that are applicable in their own work.