NAACCR Online Education
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Contains 3 Component(s) Recorded On: 08/28/2023
It is important that at least one staff person from each central registry attend. This instructional webinar will cover the standard Call for Data process and will highlight critical changes for this year, including new data items and the required tumor-level de-duplication protocol. This webinar will be recorded. Call for Data General Timeline: • Aug 28th CFD Instructional Webinar • Sept 1st CFD Resources available on the NAACCR Call for Data Webpage • First week of Oct: NAACCR*Prep release • Nov 1st CFD Portal Opens • Dec 5th NAACCR CFD Due
Contains 1 Component(s)
In this course, you will learn about important concepts for managing the data accumulated in a cancer registry. These include an orderly multi-step workflow that focuses on data accuracy, use of appropriate software, and recommended procedures for securing the data from threats and unauthorized use.
Contains 5 Component(s) Recorded On: 03/20/2023
CONCORD: After describing world-wide surveillance of trends in cancer survival for the first time in 2015, the third cycle of the CONCORD programme (CONCORD-3) was updated to include patients diagnosed between 2000 and 2014, with follow-up to 31 December 2014. It included data for 18 cancers or haematological malignancies that collectively represented 75% of the global cancer burden in 2014. Individual patient records for over 37.5 million patients were included in the analyses. These data were provided by 322 population-based cancer registries in 71 countries and territories, of which 47 provided data with 100% national population coverage. Cancer registries in nine Canadian provinces and 42 US states contributed data for a total of 14,320,034 patients. Since 2017, the Organisation for Economic Cooperation and Development has included survival estimates from the CONCORD programme among the indicators of the effectiveness of health systems in managing cancer in all its Health at a Glance reports. VENUSCANCER: Embedded in the CONCORD programme, this is a world-wide project designed to explain the global inequalities in patterns of care, short-term survival and trends in avoidable premature deaths from breast, cervical and ovarian cancers, the three most common cancers in women. The goal of this project, funded by the European Research Council, is to provide levers for health policy to reduce or eliminate avoidable differences in survival from these cancers. During the webinar we will discuss the ongoing data submission to the VENUSCANCER project, and the recent call for data for CONCORD-4. Presentations: VENUSCANCER: Project Overview and Extend Call for Data Claudia Allemani, MSc, PhD, FHEA, MFPH London Scholl of Hygiene and Tropical Medicine SAS-Code to map NAACCR Data Structure to VENUSCANCER data specification Bozena Morawski, BA, MPH, PhD Cancer Data Registry of Idaho CONCORD-4: Scope and Ambition, and Call for Data Michel Coleman, BA, BM BCh, MSc, FFPH London School of hygiene and Tropical Medicine SAS-code to Map NAACCR Data Structure to CONCORD-4 Data Specification Christopher Johnson, MPH Cancer Data Registry of Idaho
Contains 2 Component(s)
Climate change is one of the biggest threats we face—with a wide range of impacts on human health. NIH has recognized the urgency of these issues and has created a relatively new Climate Change and Health Initiative. This initiative is intended to fund new research and partnerships focused on reducing health threats from climate change across the lifespan and build health resilience in individuals, communities, and nations around the world, especially among those at highest risk. Please join us on May 22nd, 2023 at 2pm EDT for presentations from researchers involved in research supported by this initiative.
Contains 3 Component(s) Recorded On: 04/26/2023
This webinar will provide information on secondary data sharing initiatives, resources, and benefits from the research, registry, and patient perspective. Inspire registries to eliminate barriers to secondary data sharing and adopt resources to facilitate such sharing while protecting registry data. Secondary Data Sharing Fact Sheet Presentations: Maximizing Research Discovery Through Secondary Data Sharing Dennis Deapen, DrPH, MPH University of Southern California VPR Templated DUA: A Vehicle for Secondary Data Sharing Castine Clerkin, MS, CTR NAACCR Unique Results Obtained Through Secondary Data Sharing of the Multiethnic Cohort Lynne Wilkens, DrPH, MS University of Hawaii Cancer Center A Registry Perspective on Secondary Data Sharing Marjorie Carter, MS Utah Cancer Registry Patient Perspective on Secondary Data Sharing Hanna Jorgenson Cancer Survivor
Contains 3 Component(s) Recorded On: 03/06/2023
This webinar will focus on using Match*Pro to deduplicate registry data at the tumor-level. Using Match*Pro will be an integral part of meeting the duplicate threshold for NAACCR Certification. This webinar will provide an overview of the duplicate protocol and step-by-step instructions for running the updated, tumor-level Match*Pro protocol. How to save a results archive to apply to subsequent years will also be covered. This training will also be recorded and available, along with associated resources, on the NAACCR Call for Data Tools Tab.
Contains 2 Component(s) Recorded On: 02/06/2023
This webinar will be focused on NCI’s interactive geospatial tools that are useful for characterizing areas of the country in terms of cancer incidence, mortality, screening frequency, risk factors, socio-demographic and environmental variables relevant to cancer. This presentation will introduce two resources of geospatial tools for visualization of population-based cancer statistics at NCI: 1) State Cancer Profiles, an interactive mapping engine designed to provide a geographic profile of cancer with a combination of maps, charts, tables, and graphs presenting the latest available cancer statistics and other relevant data; and 2) GIS Portal for Cancer Research, a more comprehensive resource of geographically referenced cancer statistics, social and environmental data, several interactive tools, and knowledge related to geographic disparities in cancer burden.
Contains 4 Component(s) Recorded On: 01/30/2023
This "How To" webinar is the NAACCR Version 22 update for creating census tract-Level SEER*Stat databases to support spatial analysis and health equity research. These resources, which include census tract-level population estimates for the United States, are freely available and developed specifically for use in cancer surveillance. This webinar addresses how to calculate cancer rates in SEER*Stat by tract-level based social measure, such as NAACCR Poverty Code. How to handle the NAACCR Version 22 incidence data, census tract-level population estimates, and the area-based social measures data will be covered step by step. This webinar is appropriate for registry analysts, academic researchers, and anyone interested in the use of cancer registry data.
Contains 2 Component(s) Recorded On: 11/07/2022
This webinar will feature three presentations on Canadian Cancer Surveillance
Contains 2 Component(s) Recorded On: 10/17/2022
Speaker: Dr. Loraine Escobedo Presentation: Geographic targeting of breast cancer screening services to high-need neighborhoods in Los Angeles County Dr. Escobedo will discuss geospatial methods to use cancer registry data to identify high-need neighborhoods where early breast cancer screening programs may be targeted to be most cost-effective. Speaker: Dr. Laticia Varella Presentation: Recent developments in breast cancer treatment Dr. Varella will discuss the main developments in breast cancer treatment in the past 2 years, with a focus on practice-changing clinical trials.