The revised Common Rule (effective January 21, 2019) is designed to strengthen protections for study participants and lighten administrative workloads for researchers and IRBs alike. These changes impact how research studies involving linkage with cancer registries, like those managed through NAACCR’s Virtual Pooled Registry, will be reviewed and processed across the country. NAACCR has partnered with the HHS Office for Human Research Protections (OHRP) to share information on the revised Common Rule, such as when research involving registries requires IRB review and the impact of the changes on research covered by the revised regulations. Intended Audience: State/University IRBs and staff from central cancer registries involved in linking with research studies and releasing coded cancer data for matched cases.

AI/AN people experience a different burden of cancer than their non-Native counterparts. This webinar will discuss current issues in AI/AN cancer surveillance, and present research that aims to describe and understand cancer among Indigenous peoples in the US and Canada.

Cancer data is often available in reports, public data files, and slide decks, but these methods for disseminating data are not interactive, user-friendly, or visually appealing. While data visualizations are available from national cancer organizations, the Louisiana Tumor Registry (LTR) decided that creating a tool tailored to the needs of Louisiana would be a valuable contribution to the dissemination and use of its cancer registry data. Thus, the LTR collaborated with a data visualization specialist to create a user-friendly portal for Louisiana cancer data. The objective of this webinar is to describe the experience of developing an effective data visualization from the perspective of both the data visualization specialist and the state cancer registry.

The collapse of the World Trade Center (WTC) towers due to the terrorist attacks on September 11, 2001 created an unprecedented mixture of hazardous materials including known and suspected carcinogens including, but not limited to, asbestos, polycyclic aromatic hydrocarbons, polychlorinated biphenyls, and dioxins. Three research centers that follow cohorts of rescue/recovery workers since the WTC disaster include: the Fire Department of the City of New York (FDNY); the Icahn School of Medicine at Mount Sinai (ISMMS); and the New York City Department of Health and Mental Hygiene (DOHMH). These centers have reported mostly non-significantly elevated cancer rates post-exposure to the WTC-site. Challenges of determining the causal relationship between WTC exposure and cancer in rescue/recovery workers include: lack of individual-level exposure data for specific chemicals, different exposure ascertainment methodologies for the three cohorts, loss to follow-up, inadequate power for cohort-specific analyses, demographic heterogeneity between the cohorts, and the lack of a viable comparison cohort.

During this webinar, presenters will introduce, review, demo and/or discuss: 1. Alias Tables for improving data quality and reducing the burden of manual matches 2. Micro Match Status-a new variable describing the quality of a geocoding match 3. Advanced Search options including "Exhaustive Search," "Uncertainty Hierarchy," and "Limit Minimum Match Score" 4. New NAACCR Manual Geocoding Interface (Beta version) 5. Operations: how to interpret long/lat precision, which census years to append This webinar is relevant to all users of the NAACCR Geocoder including those accessing via the NAACCR Webpage or API, such as SEER*DMS users.

This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting. Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following: - VPR-CLS Pilot Testing and Next Steps - Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues - Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

On behalf of NAACCR and our co-authors from ACS, CDC, and NCI, we are pleased to present a webinar on the latest Annual Report to the Nation on the Status of Cancer. This is our 21st Annual Report, and NAACCR was the lead agency. The Annual Report represents a collaborative effort by senior researchers from each major cancer surveillance organization in the United States to produce the up to date and comprehensive trends in cancer incidence and mortality. Each year we also focus on a special topic, and this year we focused on cancer among adults aged 20-49.

California is the most populated state and has the largest ethnic/racial minority population in the US. With 20% of the nation’s minority population living in the state, California has a unique population to both describe and serve in regards to cancer prevention and control. This NAACCR Talk highlights three California, minority-focused cancer research projects on Chinese Americans, Hispanics, and African Americans.

The Surveillance Research Program (SRP) at the Division of Cancer Control and Population Sciences of the National Cancer Institute provides national leadership in the science of cancer surveillance in the US, which includes analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based cancer statistics. This surveillance infrastructure benefits the public, policymakers, and scientists in understanding changes in cancer incidence and outcomes in all segments of the US population over time. The objective of the webinar is to provide an overview of the breadth and scope of statistical software and tools in the areas of incidence and mortality, survival, prevalence, and geospatial methods and tools. At the completion of the webinar, audience will gain a basic understanding of the software/tools and will be able to explore in more details into specific tools that are applicable in their own work.

SEER*Stat is a powerful statistical application that is available free of charge from the US National Cancer Institute and provides a mechanism for the analysis of population-based cancer registry data. It has modules for the analysis and reporting of the four most common cancer-related metrics: incidence, survival, prevalence, and mortality.