International Cancer Surveillance Projects: CONCORD and VENUSCANCER

Recorded On: 03/20/2023

Overview
Speaker(s)

CONCORD: After describing world-wide surveillance of trends in cancer survival for the first time in 2015, the third cycle of the CONCORD programme (CONCORD-3) was updated to include patients diagnosed between 2000 and 2014, with follow-up to 31 December 2014. It included data for 18 cancers or haematological malignancies that collectively represented 75% of the global cancer burden in 2014. Individual patient records for over 37.5 million patients were included in the analyses. These data were provided by 322 population-based cancer registries in 71 countries and territories, of which 47 provided data with 100% national population coverage. Cancer registries in nine Canadian provinces and 42 US states contributed data for a total of 14,320,034 patients. Since 2017, the Organisation for Economic Cooperation and Development has included survival estimates from the CONCORD programme among the indicators of the effectiveness of health systems in managing cancer in all its Health at a Glance reports.

VENUSCANCER: Embedded in the CONCORD programme, this is a world-wide project designed to explain the global inequalities in patterns of care, short-term survival and trends in avoidable premature deaths from breast, cervical and ovarian cancers, the three most common cancers in women. The goal of this project, funded by the European Research Council, is to provide levers for health policy to reduce or eliminate avoidable differences in survival from these cancers.

During the webinar we will discuss the ongoing data submission to the VENUSCANCER project, and the recent call for data for CONCORD-4.

Presentations:
VENUSCANCER: Project Overview and Extend Call for Data
Claudia Allemani, MSc, PhD, FHEA, MFPH
London Scholl of Hygiene and Tropical Medicine

SAS-Code to map NAACCR Data Structure to VENUSCANCER data specification
Bozena Morawski, BA, MPH, PhD
Cancer Data Registry of Idaho

CONCORD-4: Scope and Ambition, and Call for Data
Michel Coleman, BA, BM BCh, MSc, FFPH
London School of hygiene and Tropical Medicine

SAS-code to Map NAACCR Data Structure to CONCORD-4 Data Specification
Christopher Johnson, MPH
Cancer Data Registry of Idaho

Claudia Allemani, MSc, PhD, FHEA, MFPH

Professor of Global Public Health

London School of Hygiene and Tropical Medicine

Dr. Claudia Allemani is Professor of Global Public Health at the London School of Hygiene and Tropical Medicine. Claudia’s background covers the range from applied mathematics to public health and education, via epidemiology and medical statistics. She graduated [laurea magistrale] in mathematics from the University of Turin, Italy, in 1996, then completed a Master’s degree in Statistical and Informatic Methods for data analysis in the University of Milan, Italy, in 1998, followed by a specializzazione [PhD equivalent] in Medical Statistics in 2001, and a PhD in Public Health and Education in 2006, both in the University of Pavia, Italy. She was elected a Fellow of the UK Higher Education Academy in July 2012, and an Honorary Member of the UK Faculty of Public Health (FPH) in March 2014. She was awarded the Faculty’s inaugural Global Public Health Award in June 2016.

Her main interests are in international comparisons of cancer survival trends (EUROCARE, HAEMACARE, CONCORD Programme), “high&dash;resolution” studies on patterns of care, as well as the estimation of avoidable premature deaths, with focus on their impact on cancer policy. She has over 20 years’ experience in this domain. She leads the data management, quality control and survival analyses for the global surveillance of cancer survival (CONCORD), for which she is co&dash;Principal Investigator. In 2017, she obtained a prestigious European Research Council Consolidator grant to carry out a world&dash;wide study on inequalities in survival from cancers of the breast, cervix and ovary (VENUSCANCER).

Bozena Morawski, PhD, MPH

Epidemiologist

Cancer Data Registry of Idaho

Dr. Bozena Morawski is an epidemiologist at the Cancer Data Registry of Idaho and co-Principal Investigator for Idaho’s SEER contract. She received a PhD in epidemiology from the University of Minnesota and an MPH from the University of California, Los Angeles. She chairs the NAACCR Data Security and Confidentiality Work Group, is a member of the CiNA Editorial Work Group, and a member of the CiNA Survival and Prevalence Work Group.

CDRI’s involvement in this project was funded in whole with Federal funds from the National Cancer Institute, National Institutes of Health, Department of Health and Human Services, under Contract No. HHSN261201800006I, and the Centers for Disease Control and Prevention, Department of Health and Human Services, under Cooperative Agreement NU58DP007160 to the Cancer Data Registry of Idaho, Idaho Hospital Association.

The findings and conclusions in this presentation are those of the authors and do not necessarily represent the official position of the National Cancer Institute or the Centers for Disease Control and Prevention.

Michel Colman, BA, BM BCh, MSc, FFPH

Professor of Epidemiology and Vital Statistics

London School of Hygiene and Tropical Medicine

Michel Coleman has been a Professor of Epidemiology and Vital Statistics at the London School of Hygiene and Tropical Medicine (LSHTM) since 1995; Head of the Cancer Survival Group at LSHTM since 2005, and Honorary Consultant in Oncology at UCL Hospitals NHS Foundation Trust since 2012.

He has worked for the World Health Organisation at the International Agency for Research on Cancer in Lyon (1987-1991), and was Medical Director of the Thames Cancer Registry in London (1991-1995). He was Head of the Cancer and Public Health Unit (LSHTM) during 1998-2003; Deputy Chief Medical Statistician (Office for National Statistics) during 1995-2004, and Head of the WHO UK Collaborating Centre on the Classification of Diseases during 1996-2004. With Professor Claudia Allemani, he is co-Principal Investigator of the CONCORD programme for the global surveillance of trends in cancer survival.

Christopher Johnson, MPH

Epidemiologist, Idaho SEER Principal Investigator

Cancer Data Registry of Idaho

Chris Johnson has worked as an epidemiologist for the Cancer Data Registry of Idaho, a program of the Idaho Hospital Association, since 1998. Mr. Johnson received a Master of Public Health degree in biostatistics from the University of North Carolina, a long time ago. He has been involved with NAACCR since early in his career as a cancer epidemiologist, and his main contributions to NAACCR today are on the Virtual Pooled Registry Cancer Linkage System and as lead editor for the NAACCR Cancer in North America (CiNA) survival and prevalence volumes.