Registry Operations NAACCR Talks

  • Contains 2 Component(s) Recorded On: 02/26/2024

    Adolescent and Young Adult (AYA) Oncology: The insights gained from the Malignant Germ Cell International Consortium (MaGIC). Dr. A. Lindsay Frazier, MD One of the most common adolescent and young adult (AYA) cancers are the cell tumors (GCTs), however no significant change has happened to GCTs treatments protocols in the last decades. The Malignant Germ Cell International Consortium (MaGIC) brings together the world’s leading experts in germ cell tumors (GCTs), from across the spectrum of cancer research, with the shared goal of developing more effective treatments for GCTs through scientific inquiry. As the lead of the Malignant Germ Cell Tumor International Consortium, Dr Lindsay will discuss AYA Oncology and share important lessons learned in the field of GCT research. Forecasting for Accurate Procurement of Pediatric Chemotherapies. Dr. Shrivastava, MD, MPH Forecasting the cost and quantities of pediatric chemotherapies is an essential part of ensuring a reliable supply of essential medicines for the care of children with cancer. Dr. Shrivastava will describe the importance of access to accurate registry data and its relevance today amongst several critical drug shortages.

  • Contains 3 Component(s) Recorded On: 01/29/2024

    Three presentations with a focus on applications of Artificial Intelligence (AI) and Natural Language Processing (NPL) in the cancer registry field.

  • Contains 5 Component(s) Recorded On: 11/06/2023

    This two-part series is presented by CDC colleagues who are on the forefront of a number of initiatives in the rapidly developing area of public health interoperability. This educational series was presented at the NAACCR annual conference in June 2023 and, due to popular demand, is being offered as a "replay" for the entire NAACCR community. These two sessions will provide an overview of key interoperability terms and an update on current initiatives that will impact public health and cancer surveillance in particular. These initiatives are intended to improve health data exchange and quality across healthcare. Topics will include benefits and potential implications for registries. There will be time for questions and answers throughout both sessions.

  • Contains 3 Component(s) Recorded On: 04/26/2023

    This webinar will provide information on secondary data sharing initiatives, resources, and benefits from the research, registry, and patient perspective. Inspire registries to eliminate barriers to secondary data sharing and adopt resources to facilitate such sharing while protecting registry data. Secondary Data Sharing Fact Sheet Presentations: Maximizing Research Discovery Through Secondary Data Sharing Dennis Deapen, DrPH, MPH University of Southern California VPR Templated DUA: A Vehicle for Secondary Data Sharing Castine Clerkin, MS, CTR NAACCR Unique Results Obtained Through Secondary Data Sharing of the Multiethnic Cohort Lynne Wilkens, DrPH, MS University of Hawaii Cancer Center A Registry Perspective on Secondary Data Sharing Marjorie Carter, MS Utah Cancer Registry Patient Perspective on Secondary Data Sharing Hanna Jorgenson Cancer Survivor

  • Contains 3 Component(s) Recorded On: 03/06/2023

    This webinar will focus on using Match*Pro to deduplicate registry data at the tumor-level. Using Match*Pro will be an integral part of meeting the duplicate threshold for NAACCR Certification. This webinar will provide an overview of the duplicate protocol and step-by-step instructions for running the updated, tumor-level Match*Pro protocol. How to save a results archive to apply to subsequent years will also be covered. This training will also be recorded and available, along with associated resources, on the NAACCR Call for Data Tools Tab.