All NAACCR Talks

  • Revised Common Rule

    The revised Common Rule (effective January 21, 2019) is designed to strengthen protections for study participants and lighten administrative workloads for researchers and IRBs alike. These changes impact how research studies involving linkage with cancer registries, like those managed through NAACCR’s Virtual Pooled Registry, will be reviewed and processed across the country. NAACCR has partnered with the HHS Office for Human Research Protections (OHRP) to share information on the revised Common Rule, such as when research involving registries requires IRB review and the impact of the changes on research covered by the revised regulations. Intended Audience: State/University IRBs and staff from central cancer registries involved in linking with research studies and releasing coded cancer data for matched cases.

  • Informatics Tools and Processes for the XML Data Exchange Standard

    Recorded On: 07/22/2020

    The XML webinar will be covering NAACCR XML Informatics Tools and Processes to prepare the NAACCR community for 2021. We will have 4 presentations from several software vendors and central registries that have either already made the transition to XML or are about to finish and would like to share their software, tips, and techniques with the NAACCR community.

  • Topics in AI/AN Cancer Surveillance

    Recorded On: 05/20/2020

    AI/AN people experience a different burden of cancer than their non-Native counterparts. This webinar will discuss current issues in AI/AN cancer surveillance, and present research that aims to describe and understand cancer among Indigenous peoples in the US and Canada.

  • NAACCR Best Practices: Recruitment and Retention Toolkit

    Recorded On: 05/06/2020

    This webinar will introduce attendees to the new NAACCR Recruitment and Retention Toolkit. The purpose of the Toolkit is to provide central cancer registries (CCRs) with proven strategies for attracting and retaining qualified staff. The Toolkit was developed by the NAACCR Professional Development Steering Committee from best practices submitted by CCRs throughout North America. Every CCR is unique, with its own recruitment and retention challenges. Consequently, no one strategy will suit the needs of every CCR, so the NAACCR R&R Toolkit contains a variety of resources to choose from and customize to meet the specific needs of the registry. The Toolkit is available at https://www.naaccr.org/recruitment-retention-toolkit/.

  • A Step-by-Step Guide to Creating a Cancer Data Visualization

    Recorded On: 02/12/2020

    Cancer data is often available in reports, public data files, and slide decks, but these methods for disseminating data are not interactive, user-friendly, or visually appealing. While data visualizations are available from national cancer organizations, the Louisiana Tumor Registry (LTR) decided that creating a tool tailored to the needs of Louisiana would be a valuable contribution to the dissemination and use of its cancer registry data. Thus, the LTR collaborated with a data visualization specialist to create a user-friendly portal for Louisiana cancer data. The objective of this webinar is to describe the experience of developing an effective data visualization from the perspective of both the data visualization specialist and the state cancer registry.

  • Interstate Data Exchange

    Recorded On: 12/11/2019

    This webinar will be an overview of the NAACCR Interstate Data Exchange Guidelines, the National Interstate Data Exchange Agreements, and the National Interstate Data Exchange Application System (N-IDEAS).

  • Cancer in World Trade Center Rescue & Recovery Workers: Past Findings, Current Research and the Future

    Recorded On: 09/11/2019

    The collapse of the World Trade Center (WTC) towers due to the terrorist attacks on September 11, 2001 created an unprecedented mixture of hazardous materials including known and suspected carcinogens including, but not limited to, asbestos, polycyclic aromatic hydrocarbons, polychlorinated biphenyls, and dioxins. Three research centers that follow cohorts of rescue/recovery workers since the WTC disaster include: the Fire Department of the City of New York (FDNY); the Icahn School of Medicine at Mount Sinai (ISMMS); and the New York City Department of Health and Mental Hygiene (DOHMH). These centers have reported mostly non-significantly elevated cancer rates post-exposure to the WTC-site. Challenges of determining the causal relationship between WTC exposure and cancer in rescue/recovery workers include: lack of individual-level exposure data for specific chemicals, different exposure ascertainment methodologies for the three cohorts, loss to follow-up, inadequate power for cohort-specific analyses, demographic heterogeneity between the cohorts, and the lack of a viable comparison cohort.

  • Geocoding Instructional Webinar

    Recorded On: 08/21/2019

    During this webinar, presenters will introduce, review, demo and/or discuss: 1. Alias Tables for improving data quality and reducing the burden of manual matches 2. Micro Match Status-a new variable describing the quality of a geocoding match 3. Advanced Search options including "Exhaustive Search," "Uncertainty Hierarchy," and "Limit Minimum Match Score" 4. New NAACCR Manual Geocoding Interface (Beta version) 5. Operations: how to interpret long/lat precision, which census years to append This webinar is relevant to all users of the NAACCR Geocoder including those accessing via the NAACCR Webpage or API, such as SEER*DMS users.

  • Virtual Pooled Registry Cancer linkage System (VPR-CLS)

    Recorded On: 08/06/2019

    This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting. Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following: - VPR-CLS Pilot Testing and Next Steps - Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues - Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

  • Annual Report to the Nation with a Special Feature on Cancer in Adults Aged 20-49

    Recorded On: 06/27/2019

    On behalf of NAACCR and our co-authors from ACS, CDC, and NCI, we are pleased to present a webinar on the latest Annual Report to the Nation on the Status of Cancer. This is our 21st Annual Report, and NAACCR was the lead agency. The Annual Report represents a collaborative effort by senior researchers from each major cancer surveillance organization in the United States to produce the up to date and comprehensive trends in cancer incidence and mortality. Each year we also focus on a special topic, and this year we focused on cancer among adults aged 20-49.