The purpose of this webinar is to discuss how registries can better understand and support the NCI data sharing requirements for researchers, which for some registries currently pose significant barriers. A significant and related topic, demonstration of data sharing methodologies, will be presented in the future.

The Rate Stabilizing Tool (RST) is an ArcGIS-based tool that allows users to input their own record-level data to generate reliable, local-level age-standardized measures of chronic disease (e.g., prevalence, incidence, and mortality), or other population health outcomes. Bayesian modelling techniques are used to generate population health estimates and enable users to evaluate statistical uncertainty in the estimates. The RST is especially useful for estimating population health measures when the population, or number of events is small. More information on the RST can be found here: https://www.cdc.gov/dhdsp/maps/gisx/rst.html

NAACCR has for many years provided SAS tools to the cancer surveillance community for reading and writing NAACCR-standard flat files. With the switch in V21 to only XML format, the toolset needed an upgrade. This webinar will demonstrate how to read and write NAACCR V21 XML files using SAS. It is highly recommended for registry staff and others in the cancer surveillance community who want to interface with NAACCR V21 XML files using SAS.

This NAACCR Talk is based on a concurrent session that had been planned for the in person 2020 NAACCR Annual Conference.

This NAACCR Talk is based on a concurrent session that had been planned for the in person 2020 NAACCR Annual Conference.

This NAACCR Talk is based on a concurrent session that had been planned for the in person 2020 NAACCR Annual Conference.

This NAACCR Talk is based on a concurrent session that had been planned for the in person 2020 NAACCR Annual Conference.

This NAACCR Talk is based on a concurrent session that had been planned for the in person 2020 NAACCR Annual Conference.

This NAACCR Talk is based on a concurrent session that had been planned for the in person 2020 NAACCR Annual Conference.

Research has demonstrated that firefighters are routinely exposed to many known and suspected human carcinogens including brominated flame retardants, PAHs, VOCs, benzene, asbestos and PFAS. While there is strong evidence that firefighters have higher risk for certain types of cancer compared to the general population, many details about cancer risk and risk factors remain poorly understood and subgroups of firefighters; including women, minorities, and volunteers, are understudied. Evidence for excess risk of cancer comes largely from historical cohort studies with limited exposure information and often lack data on important potential confounding factors, such as smoking and alcohol use. And because the cohorts are identified mainly through employment related records, these studies may be susceptible to downward bias from healthy worker effects. These studies also e exclude the majority of firefighters, who are volunteer not career firefighters. The aims of this session are to understand best practices for use of cancer registry data to this field of study, describe data access challenges and approaches, address approaches to improve exposure assessment and minimize impact of healthy worker effects, as well as become familiar with the development of the new National Firefighter Registry that aims to address the above gaps in information on understudied subgroups, such as woman and minorities, as well as volunteer and wildfire firefighters.