Virtual Pooled Registry Cancer linkage System (VPR-CLS)

Recorded On: 08/06/2019

This webinar aims to more broadly share information on the Virtual Pooled Registry Cancer Linkage System (VPR-CLS) that was presented during the 2019 NAACCR/IACR Annual Meeting.  Geared toward U.S. registries with knowledge of the VPR-CLS, the webinar will include presentations on the following:

- VPR-CLS Pilot Testing and Next Steps
- Status of the Templated IRB/Registry Application, Implementation of the Central IRB, and Local Context Issues
- Cancer Ascertainment by U.S. Population-Based Cancer Registries, Self-Report and Death Certificates in the Nationwide U.S. Radiologic Technologist Cohort: A Preliminary Report

Castine Clerkin, MS, CTR

VPR Program Manager, NAACCR

Castine is the Program Manager for NAACCR’s Virtual Pooled Registry project. In this role she oversees all aspects of the project, from pilot linkages to workgroup calls to system development and testing.  Prior to joining NAACCR, Castine was a Program Consultant with CDC’s National Program of Cancer Registries for over 7 years.  Castine began her career in cancer surveillance in 2001, working as the epidemiologist and data manager for the Maine Cancer Registry.

Steve Friedman, MHA

Senior Advisor, Surveillance Research Program, NCI/DCCPS

SteveFriedman, MHA, joined the Surveillance Research Program as a Senior Advisor forOperations in July of 2015. He works on several major initiatives, includingSEER, Natural Language Processing (NLP), the Virtual Bio-Repository (VTR) andthe Virtual Pooled Registry (VPR). In January 2018 he was named the LeadContracting Officer Representative (COR) for the SEER Program. Mr. Friedmanserved as a founding Director for the Association for the Accreditation ofHuman Research Protection Programs and is a past President of the Board for theUlmanCancer Fund for Young Adults. He is the recipient of several NIH Merit Awardsand a NIH Director’s Award. Mr. Friedman received his Master of Health ServicesAdministration from the George Washington University and is currently AdjunctFaculty with the MPH@GWU program.

Annelie Landgren, MPH, PMP

Contractor, Surveillance Research Program, NCI/DCCPS

Ms. Anelie Londgren has been a project manager at the NCI since 2006. She began in the Division of Cancer Epidemiology and Genetics in the Radiation Epidemiology branch leading and coordinating large division and branch projects. She designed and developed the author online management system and managed the coordination for the 4th edition of "Schottenfeld and Fraumeni: Cancer Epidemiology and Prevention". Recently she transitioned to the Division of Cancer Control and Population Sciences in the Surveillance Research Program where her focus is project management related to the Virtual Pooled Registry (VPR). Using her knowledge of application-linkage and tracking processes, she had coordinated efforts to form the online VPR Cancer Linking System (VPR CLS) using data from the US Radiologic Technologists database and 43 individual cancer registries across the US.

Danping Liu, PhD

Investigator Biostatistics Branch, NCI/DCEG

Dr. Liu received his Ph.D. in biostatistics from the University of Washington in 2010, and completed a two-year postdoctoral training at the National Alzheimer’s Coordinating Center, University of Washington. Prior to joining NCI, he served as a tenure-track investigator at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). Dr. Liu joined the Biostatistics Branch of the NCI Division of Cancer Epidemiology and Genetics in October 2017.


NAACCR Talk Recording
Presented Live on August 6, 2019 You must register to access.