Childhood Cancer

National Childhood Cancer Registry Update

Johanna Goderre, MPH Health Data Scientist, Surveillance Research Program National Cancer Institute

This presentation will provide an update on progress in the National Childhood Cancer Registry and the Data Platform. 

International Childhood Cancer: Updates from the Pediatric Conference in Paris

Lynne Penberthy, MD, Associate Director, Surveillance /Research Program, National Cancer Institute

This presentation will cover updates on the Paris Conference regarding the International Childhood Cancer Data Partnership highlighting the importance of international data sharing for understanding pediatric cancer and providing an update on subsequent work towards the goal of data sharing.

Reporting Childhood Cancer Incidence in Kentucky Leads to Recurring Investments in Childhood Cancer Research

Eric Durbin DrPH, MS, Director, Kentucky Cancer Registry

This presentation will share Kentucky's experience in generating an annual report of childhood cancer that has been an effective resource for advocates for increased childhood cancer research funding.

Johanna Goderre, MPH

Health Data Scientist

National Cancer Institute

Johanna has over 18 years of experience in health research and evaluation, public health informatics, health systems delivery, and the information systems necessary to support analysis and insight in those fields. In 2014, she transitioned from epidemiologic research programs to information technology solutions and standards for commercial and federal health services. Since then, she has successfully led requirements analysis to ensure healthcare systems capture and report high-quality data for quality improvement and led evaluations of information exchange efforts for state and federal governments. Ms. Goderre is experienced at helping health and biomedical stakeholders and users translate their needs into appropriate IT standards and system designs. She has authored publications about various research and data programs, including the Data Sources and Data Tools chapter in the second and third editions of Public Health Informatics and Information Systems. She holds a Master of Public Health and a Public Health Geographic Information Systems Certificate from the University of Illinois at Chicago (UIC) and a Bachelor of Arts in Socio-Anthropology and Communications from Goucher College.

Lynne Penberthy, MD

Associate Director

National Caner Institute

Dr. Lynne Penberthy is the Associate Director for the Surveillance Research Program (SRP), which is within the Division of Cancer Control and Population Sciences (DCCPS) at the National Cancer Institute (NCI). Dr. Penberthy obtained her MD from the University of Michigan and her MPH in epidemiology at Johns Hopkins. Dr. Penberthy’s career includes a surgical internship in Baltimore, Maryland, at the Sinai Hospital and a preventive medicine residency at Johns Hopkins University. After her residency, she completed her post-doctoral training in epidemiology with the CDC as an epidemic intelligence service (EIS) officer with the Commonwealth of Virginia. She is licensed to practice medicine in the state of Maryland.

Eric B Durbin, DrPH, MS

Director

Kentucky Cancer Registry

Eric B. Durbin, DrPH, MS, is an Assistant Professor in the Division of Biomedical Informatics at the University of Kentucky (UK) College of Medicine.  He serves as the Director of the Kentucky Cancer Registry (KCR) and the Director of the Cancer Research Informatics Shared Resource Facility at the UK Markey Cancer Center.  He has over 30 years of experience in population-based cancer surveillance and informatics support for basic, clinical and translational cancer research.  His research interests include precision cancer surveillance, pathology informatics, machine learning methods and cancer epidemiology.
 
Dr. Durbin’s current research is focused on the integration of multi–omics data to support decision-making in precision medicine and cancer prevention and control, informatics methods to support pediatric and young adult cancer patient surveillance and research and the development of machine learning methods to derive clinical biomarkers from narrative electronic pathology reports and digital slide images.


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Childhood Cancer