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  • RDU Webinar Series: Estimating Neighbourhood-level Behavioural Risk Factor Prevalence from Large Population-Based Surveys: a Bayesian Approach

    Contains 1 Component(s) Recorded On: 11/02/2016

    This webinar is part of a series sponsored by the Research & Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar. If you have seen a presentation at the annual conference, or elsewhere, that you feel would benefit the larger NAACCR community, please suggest it be presented in this forum.

    Complex survey-based behavioural risk factor estimates are available at the regional level, but public health insights are limited due to unobserved heterogeneity that may exist in these regions. Advanced spatial analysis techniques can produce sensible small-area estimates of risk factors and identify areas of high prevalence. This presentation describes a spatial Bayesian hierarchical model which estimates small-area prevalence of current smoking and excess bodyweight (body mass index ≥ 25 kg/m2) by pooling 5 cycles of the Canadian Community Health Survey for a region in southwestern Ontario. This study demonstrates the feasibility of a full Bayesian model for complex survey data to identify areas with elevated risk factor prevalence. These spatial analysis techniques provide small-area estimates to inform surveillance activities and may be used to explain cancer incidence at small-area levels of geography.

    Laura Seliske, PhD

    Research Associate-Surveillance Research, Analytics & Informatics

    Dr. Seliske has been a Research Associate with Cancer Care Ontario since 2012, and is involved in the small-area analysis of cancer and its determinants. Prior to joining Cancer Care Ontario, Dr. Seliske completed her training in epidemiology at Queen's University, in Kingston Ontario.

  • RDU Webinar Series: Data Visualization a Tool for Sharing Cancer Registry Data

    Contains 1 Component(s) Recorded On: 10/12/2016

    This webinar is part of a series sponsored by the Research and Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar. If you have seen a presentation at the annual conference, or elsewhere, that you feel would benefit the larger NAACCR community, please suggest it be presented in this forum.

    North American cancer registries excel at collecting high-quality data and, as a result, they are among the most sophisticated disease surveillance systems in the world. We have not always focused equal effort on sharing our knowledge with the rest of the world in an easily consumable format. This webinar will show how modern data visualization methods can be used to make our data easier to access and understand for both internal and external stakeholders. Attendees will gain a high-level understanding of state-of-the-art data visualization principles and methods to can be used to enhance communication of cancer registry data in multiple forms including operational reports, surveillance reports, and research results.

    The first portion of this webinar will review basic principles of visual design and provide an overview of different data visualization approaches. We will describe how to match the message you are trying to convey with the different types of graphs and design approaches. Through a series of make-overs, we will demonstrate how different data visualization techniques can improve the effectiveness of your data presentations. Finally, we will provide attendees with pointers to resources to help apply these principles in their work.

    In the second portion of the webinar will describe examples from the Colorado Central Cancer Registry (CCCR) of several data visualization and dissemination projects that make registry data easier to access and understand. Specific examples of recent data visualizations will be shown and discussed with the audience, with an emphasis on how processes have changed related to data dissemination. We will also discuss successes and barriers of using the new technology.

    David Stinchcomb

    Senior Health Research Manager

    Dave Stinchcomb is a senior health research manager at Westat Inc. focusing primarily on disease surveillance, geospatial analysis, data linkages, public health informatics, and data visualization. At Westat, Mr. Stinchcomb chairs a data visualization working group that serves as a steering committee for Westat's data visualization activities.

    Randi Rycroft, MSPH, CTR

    Director

    Randi Rycroft is the Director of the Colorado Central Cancer Registry at the Colorado Department of Public Health. She has worked for the Department of Health for nearly 28 years and has served as CCCR's Director for the past 13 years. Randi is currently serving as co-Chair of NAACCR's Standardization & Registry Development Steering Committee.

  • Registry of the Future Open Forum: Real-Time Reporting Update and Discussion

    Contains 1 Component(s)

    The Assessment of Central Cancer Registry Timeliness and Reporting Standards Task Force present their survey findings for members that were not able to attend the NAACCR Conference Registry of the Future session.

    Over the past several years, NAACCR hosted several sessions focused on the “Registry of the Future". One of the common themes emanating from those sessions is that the registry of the future must be able to produce incidence rates in a more timely manner to meet customers' needs. The Assessment of Central Cancer Registry Timeliness and Reporting Standards (ACCR-TRS) Task Force is focusing on this aspect of the Registry of the Future to 1) determine barriers, challenges, and opportunities to improve timeliness of cancer reporting; and, 2) investigate the feasibility of changing central registry reporting timeliness standards to reflect better current practices and needs of registries and their customers. This webinar is a presentation of the results of the Central Registry Survey: Feasibility of Improving Timeliness and Reporting Standards distributed in May 2016. To augment what we learned from the survey, the webinar will also include a brief presentation by the 12-Month Data Task Force, describing results from their evaluation of the completeness and quality of 12-month data submitted by registries to NAACCR in their annual call for data.

    Winny Roshala, BA, CTR

    Director of Data Quality Control

    Ms. Roshala serves as the Director of Data Quality Control with the Cancer Registry of Greater California. She also currently serves as a member of the North American Association of Central Cancer Registries (NAACCR) Board of Directors, as well as various NAACCR Steering Committees, Work Groups and Task Forces.

    Mary Jane King, MPH, CTR

    Manager

    Mary Jane King received her Master of Public Health degree from the University of Massachusetts, and is a Certified Tumor Registrar and Medical Practice Manager. She has managed general practitioner practices in the US and in the UK. She trained for cancer registration in a hospital setting in Connecticut and worked in two US state cancer registries before becoming the manager of the Ontario Cancer Registry in 2006.

    Antoinette Stroup, PhD

    Director

    Nan Stroup is the Director of the New Jersey State Cancer Registry, and has previously served as the Co-Chair of the Standardization and Registry Development Steering Committee. She currently serves on the Board of Directors as President-Elect. Nan will be providing an overview of the project and describe survey responses in the Registry Profile section of the survey. Nan will also provide a short summary of next steps, which will occur toward the end of the presentation.

    Frank Boscoe, PhD

    Research Scientist

    Frank Boscoe is a long-time employee of the New York State Cancer Registry and is currently a member of the NAACCR Board of Directors. Today he will be reporting on data quality measures of the 12 month data submission versus the 23 month data submission.

    Randi Rycroft, MSPH, CTR

    Director

    Randi Rycroft is the Director of the Colorado Central Cancer Registry at the Colorado Department of Public Health. She has worked for the Department of Health for nearly 28 years and has served as CCCR's Director for the past 13 years. Randi is currently serving as co-Chair of NAACCR's Standardization & Registry Development Steering Committee.

  • RDU Webinar Series: Delay Adjustment for Cancer Incidence Estimation

    Contains 1 Component(s) Recorded On: 07/20/2016

    This webinar series is sponsored by the Research and Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar. If you have seen a presentation at the annual conference, or elsewhere, that you feel would benefit the larger NAACCR community, please suggest it be presented in this forum.

    Part 1: Reporting Delay Adjustment Across NAACCR Registries

    Presented by: Huann-Sheng Chen, Ph.D.; Mathematical Statistician, NCI

    Timely and accurate calculation of cancer incidence rates is hampered by reporting delay, the time elapsed before a diagnosed cancer case is reported to the cancer registries. While cases in SEER are first reported about two years after the end of a diagnosis year (e.g. 2013 cases were reported in the November 2015 submission), in subsequent submissions the data are updated as either new cases are found or new information is received about previously submitted cases. The idea behind modeling reporting delay is to adjust the current case count to account for anticipated future corrections (both additions and deletions) to the data. These adjusted counts are valuable in more precisely determining current cancer trends.

    Previously, delay adjustment was only available for the SEER 9 and SEER 13 registry groups, a coordinated effort by NCI, CDC and NAACCR has led to a unified approach to estimate and report delay adjusted rates across all of US and Canada. The April 2016 data release (based on the 2015 November submission with data through diagnosis year 2013) is the second year that delay factors for SEER have been based on NAACCR submission data, and a different and improved statistical model has been used with the goal of producing more stable estimates. In the first part of this talk we will describe the new methodology, how the modeling was conducted, and the results from the analysis of 2015 NAACCR data.

    Part 2: Using Delay Adjustment Models for Preliminary Estimates for Cancer Incidence for 2013

    Presented by: Denise R. Lewis, Ph.D.; Epidemiologist, NCI

    Beginning in 2011, SEER registries were required to submit data not only in November, but also in February of each year. In the second part of this talk, we present analysis of delay adjusted rates and trends for cases diagnosed through 2013 using the February 2015 submission. While February submissions require larger delay adjustment factors than November submissions, it provides a preliminary estimate of the data for the same diagnosis years as the November submission.

  • RDU Webinar Series: Use of Imputation Techniques for Modeling Missing Data in Population-based Cancer Registries

    Contains 1 Component(s) Recorded On: 05/20/2016

    This webinar series is sponsored by the Research and Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar. If you have seen a presentation at the annual conference, or elsewhere, that you feel would benefit the larger NAACCR community, please suggest it be presented in this forum.

    The purpose of this webinar is to give a global overview of missing data issues and several different imputation techniques. We will also illustrate various applications of imputation techniques in population-based cancer registry settings. We will show improving completeness of biomarkers [e.g., estrogen receptor (ER) status] for breast cancer cases from population-based cancer registries through modeling techniques using standard assumption such as ER status is missing at random (MAR). Additionally, we will demonstrate use of novel imputation methods to perform sensitivity analyses if one suspects ER status is missing not at random (MNAR). The imputed databases are available to researchers for conducting a variety of analyses of breast cancer incidence trends through SEER*Stat software.

    Topic 1: Overview of Missing Data Issues and Several Different Imputation Techniques.

    Topic 2: Imputing Missing Estrogen Status (ER) Status for Breast Cancer Cases from Population-based Cancer Registries

    Topic 3: Imputing Estrogen Receptor (ER) status under a Missing Not At Random (MNAR) Assumption

    Presenters:

    Barnali Das, PhD
    Senior Statistician
    Westat

    Nadia Howlader, MS
    Mathematical Statistician
    Surveillance Research Program, National Cancer Institute

    Rebecca Andridge, PhD
    Assistant Professor, Division of Biostatistics
    Ohio State University College of Public Health

  • RDU Webinar Series: A Discussion on KRAS Testing and Treatment

    Contains 1 Component(s) Recorded On: 05/04/2016

    This webinar series is sponsored by the Research and Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar. If you have seen a presentation at the annual conference, or elsewhere, that you feel would benefit the larger NAACCR community, please suggest it be presented in this forum.

    Capturing KRAS Testing for Stage IV Colorectal Cancer Cases: A Tale of Two States: The objective of this presentation is to provide background information on the KRAS Site-Specific Factor, explain the quality control approach and data sources used to re-review cases, describe findings related to the frequency, data sources and timing of missed KRAS testing, and present models that illustrate patient and facility characteristics associated with KRAS testing. In addition, we plan to discuss the potential implications of our findings.

    KRAS Testing and Treatment among Patients with Metastatic Colorectal Cancer: We will discuss findings on KRAS testing and treatment patterns from the Comparative Effectiveness Research project conducted with 10 registries in CDC's National Program of Cancer Registries. The objectives are to understand KRAS biomarker testing among patients with metastatic colorectal cancer and to explore the association of having a documented KRAS test and KRAS results to first line treatment, particularly EGRF inhibitor treatment. We will also compare our results with similar, earlier studies using data from SEER and eight Cancer Research Network sites.

    Presenters:

    Mary Anne Lynch, MPH
    Early Case Capture (PYAC) Study Coordinator
    Louisiana Tumor Registry

    Mary E Charlton, PhD
    Assistant Professor in the Department of Epidemiology
    Co-Investigator of the Iowa Cancer Registry

    Lori A. (Loria) Pollack, MD, MPH
    CAPT, U.S. Public Health Service| Medical Epidemiologist,
    Centers for Disease Control and Prevention (CDC)

  • Two Studies Linking Healthcare Databases with US Cancer Registries

    Contains 1 Component(s)

    Provide overview of two new data linkage studies involving collaboration with state cancer registries.

    These new studies are designed to examine the potential risk of osteosarcoma among patients treated with teriparatide versus a matched comparator not exposed to teriparatide using linkage between cancer registry data and two healthcare claims databases: (1) Medicare Part D prescription drug claims and (2) an all payer pharmacy claims database from Symphony Health Solutions (SHS). These two new studies will occur in parallel with one another, and run concurrently with the ongoing activities of state cancer registries already participating in the Osteosarcoma Surveillance Study (a retrospective case series study) and the Forteo Patient Registry (a prospective, voluntary patient medication registry), coordinated by RTI Health Solutions (RTI-HS).

    Presenters:

    Alicia Gilsenan, PHD Senior Director of Epidemiology at RTI-HS and a trained pharmacist

    Kirk Midkiff, MPH, Director of Epidemiology within RTI-HS

  • Cancer Surveillance Webinar Series: Innovative Uses of Cancer Registry Data

    Contains 1 Component(s) Recorded On: 01/13/2016

    This webinar is a new series sponsored by the Research and Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar.

    This webinar is a new series sponsored by the Research and Data Use Steering Committee. The idea is to bring high quality presentations that were presented during the annual conference to a wider audience via webinar. If you have seen a presentation at the annual conference, or elsewhere, that you feel would benefit the larger NAACCR community, please suggest it be presented in this forum. The first presentations in this series are:

    Pre-Invasive Cervical Cancer HPV Genotyping in Kentucky: Preliminary Results: Kentucky Cancer Registry (KCR) has developed a population-based pre-invasive cervical cancer surveillance system to collect information on all pre-invasive cervical cancer cases defined CIN-3 or AIS. The KCR conducted analysis on pre-invasive cervical cancer burden and HPV genotypes for Appalachian versus non-Appalachian white women. This presentation will provide an overview of the KCR system as well as results from the first analysis of this type at the state level.

    Using Cancer Registry Data to Evaluate Breast Cancer Incidence by Subtype: This presentation will describe fitness for use in research of the data items used to comprise HR/HER2 status for breast cancers as well as how to group HR/HER2 for standard, meaningful analysis of breast cancer subtypes.

    Presenters:

    Tom Tucker, PhD, Director, Kentucky Cancer Registry and Associate Director for Cancer Control, Markey Cancer Center University of Kentucky

    Recinda Sherman, PhD, Program Manager, Data Use and Research, NAACCR

  • Cancer Surveillance Webinar Series - Dynamically Generating Statistical Cancer Reports Efficiently: Getting the best bang for your buck

    Contains 1 Component(s) Recorded On: 01/29/2015

    This session focused on dynamically generating statistical cancer reports efficiently and "getting the best bang for your buck".

    Monitoring regional cancer rates is critical for strategic local and state planning and can provide a “report card" on the health of a community and insight into how well cancer prevention programs are working. However, with increasingly scarce monetary resources, producing local cancer reports on a regular basis can be challenging. We tried to develop best practices for creating effective and easily updateable cancer reports in a timely manner using limited resources. NAACCR and NCI both have an abundant array of freely available software tools for analyzing cancer statistics. Utilizing these tools in conjunction with integrated Microsoft Office products resulted in quicker updates for our Cancer in Utah reports. Ultimately, the key to refining and streamlining the process was planning. Once specific table and figure formats were developed, updating them from year to year became much quicker and less resource intensive.

    You can see the reports Kim discusses during the presenation
    Cancer In Utah: An Overview of Cancer Incidence and Mortality from 1973-2010

    Presenter: Kim Herget

    Questions can be sent to Kim Herget, Mstat of the Utah Cancer Registry, University of Utah kim.herget@hsc.utah.edu