Registry Operations

  • Contains 2 Component(s) Recorded On: 02/26/2024

    Adolescent and Young Adult (AYA) Oncology: The insights gained from the Malignant Germ Cell International Consortium (MaGIC). Dr. A. Lindsay Frazier, MD One of the most common adolescent and young adult (AYA) cancers are the cell tumors (GCTs), however no significant change has happened to GCTs treatments protocols in the last decades. The Malignant Germ Cell International Consortium (MaGIC) brings together the world’s leading experts in germ cell tumors (GCTs), from across the spectrum of cancer research, with the shared goal of developing more effective treatments for GCTs through scientific inquiry. As the lead of the Malignant Germ Cell Tumor International Consortium, Dr Lindsay will discuss AYA Oncology and share important lessons learned in the field of GCT research. Forecasting for Accurate Procurement of Pediatric Chemotherapies. Dr. Shrivastava, MD, MPH Forecasting the cost and quantities of pediatric chemotherapies is an essential part of ensuring a reliable supply of essential medicines for the care of children with cancer. Dr. Shrivastava will describe the importance of access to accurate registry data and its relevance today amongst several critical drug shortages.

  • Contains 3 Component(s) Recorded On: 01/29/2024

    Three presentations with a focus on applications of Artificial Intelligence (AI) and Natural Language Processing (NPL) in the cancer registry field.

  • Contains 5 Component(s) Recorded On: 11/06/2023

    This two-part series is presented by CDC colleagues who are on the forefront of a number of initiatives in the rapidly developing area of public health interoperability. This educational series was presented at the NAACCR annual conference in June 2023 and, due to popular demand, is being offered as a "replay" for the entire NAACCR community. These two sessions will provide an overview of key interoperability terms and an update on current initiatives that will impact public health and cancer surveillance in particular. These initiatives are intended to improve health data exchange and quality across healthcare. Topics will include benefits and potential implications for registries. There will be time for questions and answers throughout both sessions.

  • Contains 3 Component(s) Recorded On: 04/26/2023

    This webinar will provide information on secondary data sharing initiatives, resources, and benefits from the research, registry, and patient perspective. Inspire registries to eliminate barriers to secondary data sharing and adopt resources to facilitate such sharing while protecting registry data. Secondary Data Sharing Fact Sheet Presentations: Maximizing Research Discovery Through Secondary Data Sharing Dennis Deapen, DrPH, MPH University of Southern California VPR Templated DUA: A Vehicle for Secondary Data Sharing Castine Clerkin, MS, CTR NAACCR Unique Results Obtained Through Secondary Data Sharing of the Multiethnic Cohort Lynne Wilkens, DrPH, MS University of Hawaii Cancer Center A Registry Perspective on Secondary Data Sharing Marjorie Carter, MS Utah Cancer Registry Patient Perspective on Secondary Data Sharing Hanna Jorgenson Cancer Survivor

  • Contains 3 Component(s) Recorded On: 03/06/2023

    This webinar will focus on using Match*Pro to deduplicate registry data at the tumor-level. Using Match*Pro will be an integral part of meeting the duplicate threshold for NAACCR Certification. This webinar will provide an overview of the duplicate protocol and step-by-step instructions for running the updated, tumor-level Match*Pro protocol. How to save a results archive to apply to subsequent years will also be covered. This training will also be recorded and available, along with associated resources, on the NAACCR Call for Data Tools Tab.

  • Contains 2 Component(s) Recorded On: 02/06/2023

    This webinar will be focused on NCI’s interactive geospatial tools that are useful for characterizing areas of the country in terms of cancer incidence, mortality, screening frequency, risk factors, socio-demographic and environmental variables relevant to cancer. This presentation will introduce two resources of geospatial tools for visualization of population-based cancer statistics at NCI: 1) State Cancer Profiles, an interactive mapping engine designed to provide a geographic profile of cancer with a combination of maps, charts, tables, and graphs presenting the latest available cancer statistics and other relevant data; and 2) GIS Portal for Cancer Research, a more comprehensive resource of geographically referenced cancer statistics, social and environmental data, several interactive tools, and knowledge related to geographic disparities in cancer burden.

  • Contains 4 Component(s) Recorded On: 01/30/2023

    This "How To" webinar is the NAACCR Version 22 update for creating census tract-Level SEER*Stat databases to support spatial analysis and health equity research. These resources, which include census tract-level population estimates for the United States, are freely available and developed specifically for use in cancer surveillance. This webinar addresses how to calculate cancer rates in SEER*Stat by tract-level based social measure, such as NAACCR Poverty Code. How to handle the NAACCR Version 22 incidence data, census tract-level population estimates, and the area-based social measures data will be covered step by step. This webinar is appropriate for registry analysts, academic researchers, and anyone interested in the use of cancer registry data.

  • Contains 2 Component(s) Recorded On: 11/07/2022

    This webinar will feature three presentations on Canadian Cancer Surveillance

  • Contains 2 Component(s) Recorded On: 10/17/2022

    Speaker: Dr. Loraine Escobedo Presentation: Geographic targeting of breast cancer screening services to high-need neighborhoods in Los Angeles County Dr. Escobedo will discuss geospatial methods to use cancer registry data to identify high-need neighborhoods where early breast cancer screening programs may be targeted to be most cost-effective. Speaker: Dr. Laticia Varella Presentation: Recent developments in breast cancer treatment Dr. Varella will discuss the main developments in breast cancer treatment in the past 2 years, with a focus on practice-changing clinical trials.

  • Contains 3 Component(s) Recorded On: 05/23/2022

    This presentation is about opening a conversation about how to retain and attract talent by considering the communication experience and reviewing beneficial workplace cultures. Topics discussed will include how to motivate your employees; why kindness matters in the workplace, the importance of workplace culture, how to improve communication, the importance of Benefits and Rewards, as well as have input from CTR's about their work experience.